Table 1 This table outlines the major research questions that were designed in a collaborative discussion between the executive board of the Christianson Syndrome Association and parents of patients with Christianson Syndrome
From: Inaugural Christianson Syndrome Association conference: families meeting for the first time
| Â | Priority questions proposed by Christianson Syndrome families for research inquiry |
|---|---|
1. | What are optimal treatments for co-occurring epilepsy with Christianson Syndrome? |
2. | To what extent is Christianson Syndrome progressive? What is the predicted life expectancy for boys currently affected with Christianson Syndrome? |
3. | What are the less-known symptoms in Christianson Syndrome, and why are they present in the boys? |