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Table 1 Behavioural commonalities between surveys of RTT syndrome

From: A national survey of Rett syndrome: behavioural characteristics

Behavioural characteristic

Percentage of sample with characteristic

Coleman et al. [ 8 ]

Samson et al. [ 9 ]

Mount et al. [ 6 ]

Cass et al. [ 10 ]

Halbach et al. [ 11 ]

This sample

( N= 63)

( N= 107)

( N= 38)

( N= 87)

( N= 53)

( N= 91)

Hand stereotypies

100

-

100

97

-

99

Teeth grinding

95

-

37

-

-

58

Screaming

84

48 (night)

-

-

39 (night)

44

Night unrest/laughing

83

84

21

-

77

64

Anxiety/inappropriate fear

75

75

-

-

68

73

Low mood/mood changes

-

70

-

-

66

77

Hyperventilation

63

32

84

60

39

63

Breath hold

57

-

37

41

73

77

Self-injury

49

48

-

73

-

28