Table 2 Involvement in PAG and confidence in next steps across age groups
From: The diagnostic journey of genetically defined neurodevelopmental disorders
Age at time of interview (years) | Involvement in PAG | Good idea of next steps | PAG + good idea of next steps |
|---|---|---|---|
0–2 (n = 6) | 100% | 100% | 100% |
3–4 (n = 6) | 67% | 50% | 75% |
5–12 (n = 16) | 81% | 60% | 62% |
13–18 (n = 4) | 75% | 50% | 33% |
18+ (n = 4) | 50% | 50% | 50% |
Total (n = 36) | 76% | 62% | 68% |