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Table 3 Average values of diagnostic timeline compared across age groups

From: The diagnostic journey of genetically defined neurodevelopmental disorders

Age at time of interview (years)

Age of first concerns (months)

First concerns and validation (months)

First concerns and developmental diagnosis (months)

First concerns and genetic diagnosis (months)

Genetic diagnosis and seeing a specialist (months)

0–2 (n = 6)

3.5

1.7

2.5

9.5

0.7

3–4 (n = 6)

8.3

5.8

15.9

13.8

0.2

5–12 (n = 16)

8.0

6.0

20.6

32.1

2.6

13–18 (n = 4)

23.3

4.5

18.0

64.5

12.0

18+ (n = 4)

48.0

12.0

59.0

261.0

0.0