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Table 1 Demographic and clinical characteristics of participants in study 1 at baseline

From: Long-term follow-up of telehealth-enabled behavioral treatment for challenging behaviors in boys with fragile X syndrome

Measure

FCT via telehealth

(n = 24)

Treatment as usual

(n = 24)

Child age in years (M, SD)

6.68 (2.22)

7.21 (2.19)

Adaptive behavior age equivalent in years (M, SD)a

 Receptive communication

2.41 (1.42)

2.82 (1.46)

 Expressive communication

2.42 (1.23)

2.77 (1.04)

ABC-Cb (M, SD)

 Irritability

19.46 (8.66)

17.13 (9.62)

 Lethargy/social withdrawal

8.25 (7.48)

5.67 (7.20)

 Stereotypic behavior

6.58 (4.80)

5.08 (3.68)

 Hyperactivity/non-compliance

22.54 (10.89)

21.58 (9.06)

 Inappropriate speech

3.50 (3.32)

3.79 (2.93)

PSI-4c (M, SD)

 Child domain

64.88 (6.62)

63.79 (7.49)

 Parent domain

53.46 (8.07)

55.29 (9.52)

 Total stress

59.08 (6.79)

59.71 (8.37)

Other therapies (%)

 Psychotropic medications

68.8%

66.7%

 Speech therapy

75.0%

62.5%

 Occupational therapy

79.2%

45.8%

 Physical therapy

50.0%

20.8%

 Behavior therapy (including ABA)

8.3%

4.2%

  1. aVineland Adaptive Behavior Scales, 3rd Edition
  2. bAberrant Behavior Checklist–Community
  3. cParenting Stress Index, 4th Edition