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Table 1 Demographics

From: Symptom rates and profile clustering in tuberous sclerosis complex-associated neuropsychiatric disorders (TAND)

 

Children (<18 years old)

n = 418

Adults (≥ 18 years old )

n = 250

Total

n = 668

Age

 <4 years old (total visits)

130 (252)

--

--

 4–11 years old (total visits)

177 (417)

--

--

 12–18 years old (total visits)

111 (287)

--

--

 18–40 years old (total visits)

--

202 (504)

--

 >40 years old (total visits)

--

48 (85)

--

Total number of visits

956

589

1545

Sex

 Male

228 (55%)

118 (47%)

346 (52%)

 Female

190 (45%)

132 (53%)

322 (48%)

Number of visits per patient

 Average number (SD, range)

2.28 (±1.34, 1–7)

2.36 (±1.28, 1–8)

2.31 (±1.32, 1-8)

 Only 1 visit (% of total)

161 (38.5%)

84 (33.6%)

245 (36.7%)

Days between visits

 Average (±SD, range)

316.9 (±316.9, 14–1120)

335.2 (±169.17, 42–1120)

324 (±164.67, 14-1120)

Follow-up within 1 year

394 out of 538 (73.4%)

227 out of 339 (67.0%)

621 of 877 (70.8%)

Intellectual ability (self-report)a (n = 234)

 Normal (IQ ≥70)

45 (35.4%)

45 (42.1%)

90 (38.5%)

 Mild-moderate (IQ 35–69)

57 (44.9%)

36 (33.6%)

93 (39.8%)

 Severe profound (IQ < 34)

25 (19.7%)

26 (24.3%)

51 (21.8%)

 Unknown

291 (69.6%)b

143 (57.2%) b

434 (65.0%) b

  1. aSelf-report of formal evaluation, per Section 5, question of TAND checklist
  2. bPercent of total patients in each column