Fig. 5From: Top caregiver concerns in Rett syndrome and related disorders: data from the US natural history studyWeighted top caregiver concerns for classic RTT across CSS scores. Top weighted concerns are listed on the left, with the order presented representing the rank order for all people with classic RTT. CSS are shown in subsequent columns, arranged in groups from least to most severe. Percentages of people in each CSS group are shown in the header. Heatmap color, concern presentation (> 2.5% in at least one cell), and abbreviations are as in Fig. 2, with additional abbreviation: GU = GenitourinaryBack to article page