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Table 2 Demographic information

From: Top caregiver concerns in Rett syndrome and related disorders: data from the US natural history study

Participants (n = 925)

Number (%)

Ethnicity

Non-Hispanic

Hispanic

Race

White

715 (77.3)

92 (9.9)

African American/Black

31 (3.4)

2 (0.2)

Asian

28 (3)

3 (0.3)

Native American

5 (0.5)

1 (0.1)

Hawaiian/Pacific Islander

1 (0.1)

0 (0)

More than one race

26 (2.8)

5 (0.5)

Not reported

4 (0.4)

8 (0.9)

Refused

2 (0.2)

2 (0.2)

Parents

Mother

Father

Education

Advanced degree

188 (20.3)

191 (20.6)

Bachelor’s degree

293 (31.7)

235 (25.4)

Some college, no bachelor’s degree

275 (29.7)

223 (24.1)

High school diploma or GED

118 (12.8)

152 (16.4)

No high school diploma or GED

23 (2.5)

28 (3)

Not applicable

25 (2.7)

86 (9.3)

Declined

3 (0.3)

3 (0.3)

Unknown

0 (0)

7 (0.8)

Employment

Employed

517 (55.9)

735 (79.5)

Homemaker

313 (33.8)

12 (1.3)

Retired

26 (2.8)

44 (4.8)

Student

11 (1.2)

4 (0.4)

Disabled

7 (0.8)

11 (1.2)

Unemployed

25 (2.7)

19 (2.1)

Unknown

26 (2.8)

100 (10.8)

Household income

Less than $20,000

37 (4)

$20,000–$39,999

82 (8.9)

$40,000–$59,999

113 (12.2)

$60,000–$79,999

119 (12.9)

$80,000–$99,999

93 (10.1)

$100,000 or more

357 (38.6)

Declined

109 (11.8)

Not applicable

15 (1.6)