Table 3 Top concern categories

Prespecified concern choices

Abnormal movements (other than hand stereotypies)

Abnormal walking/balance issues

Aggressiveness towards others

Air swallowing/bloating/excessive gas

Anxiety

Constipation

Frequent infections

Gastro-esophageal reflux

Lack of effective chewing or swallowing

Lack of effective communication

Lack of hand use

Poor weight gain

Problems with Sleep

Rapid breathing or breath holding while awake

Repetitive hand movements

Scoliosis

Screaming episodes

Seizures

Self-abusive behavior

Teeth grinding (while awake)

Vision

Other (please specify)

Created terms

Attention/cognition/developmental delay/ID

Drooling/spitting

Dystonia/rigidity/contractures

Fatigue/lethargy/energy

GU issues

Hypotonia

None indicated

Other autonomic

Other behavior

Other GI

Other health issue

Other musculoskeletal

Pain issues

Respiratory/pulmonary

Therapy issues