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Table 5 Acceptability and importance reported by parents on a ten-point scale. Reported values are mean (SD)

From: Outcome measures in Angelman syndrome

 

Eye-tracking

fNIRS

Indirect calorimetry

BIA

BOD POD

Q1. How much do you think your child enjoyed the measurement?

5.48 (2.25)

3.33 (2.68)

5.67 (2.68)

4.89 (3.33)

7.05 (2.31)

Q2. How stressful do you think the measurement was for your child?

4.86 (2.69)

7.28 (2.20)

5.28 (3.49)

5.21 (3.30)

4.18 (3.32)

Q3. To what extend do you think this task measures an important/relevant aspect of your child’s functioning?

8.20 (1.70)

7.85 (2.45)

7.98 (1.33)

8.02 (1.54)

7.76 (1.54)